Parents Seek Government Grant For Newborn Son With Multiple Disabilities
by Jeanine M. Munn
Jonathan had a flap (fat) around his neck, which concerned my doctor. After 24 hours Jonathan did not want to eat much. He hardly went pooh, although urination was good. My son tested positive for Down syndrome, which my husband and I fully accepted. After blood tests, a spinal tap, multiple echograms of his heart, and multiple x-rays, Jonathan had to be transferred to a specialty hospital in Iowa City. More testing in Iowa City confirmed Down syndrome and Hirschsprung's disease. As I write this story today, February 19, 2010, Jonathan has had a surgery on his intestine due to Hirschsprung's disease. Jonathan is two weeks old now. He also has two holes in his heart. Doctors cannot remove his colon until his heart gets stronger and gains more weight. After six months, doctors will review Jonathan to see if he's strong enough for surgery to have his colon removed. Today he has an ileostomy, which is like a colostomy, just for the small intestine. We are asking for help from anyone who can do it. We are currently losing our home, although trying to keep it. If after you read my story and you can't help just say a prayer for my son Jonathan Munn. Prayers are powerful and free. Thank you and god bless us in seeking a grant to save my home and a grant for my sons disability.
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