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Parents Of Neonatal Herpes Disabled Daughter Seek Help For Debt Relief

by Kristin Weeks
(Winterset, IA, USA)

My daughter, Audrey, was diagnosed with neonatal herpes after her birth. She received it while in the womb.

I thought it was only possible that it could be passed during time of delivery if there was an active lesion. However I had a c-section at 30.3 weeks of gestation and she was covered with blisters.

She spent 60 days in the neonatal intensive care unit where she was treated with an antiviral medication and also an anti-seizure medication.

She also suffers from tremors whenever she is being stimulated. Neurologists said there is significant brain damage. About 50% of her brain is fluid filled cysts and the other 50% is severely damaged.

It is really difficult to deal with the fact that I can never actually tell if she is in pain or wants/needs something because Audrey never cries.

She is fed through her g-tube every four hours during the day and on a continuous eight-hour feed at night.

Audrey has been through a lot of distress from her condition and would benefit from all day care from me, her mother.

I have not worked since Audrey has been home and have been caring for her and her three older brothers, ages one and a half to four.

Audrey's dad works a regular 40 hours a week but it never seems to be enough to get by and we keep getting further and further behind on bills and not having adequate money to get enough groceries at the end of the week.

Government grant money would help us get by until we could save enough to get on our feet again.

Audrey is such a special little girl and has taught us so much about life during all of our hardships and I'm sure she isn't done yet.




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Parents Of Neonatal Herpes Disabled Daughter Seek Help For Debt Relief

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Jun 12, 2010
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by: Katina from Accessible.org

Congratulations on making the effort to submit your story to Accessible.org. With the publication of your story, you are now well on your way to:

1. Getting your story known to a wide audience that could help you.

2. Getting your story polished up and presentable so you can submit it elsewhere, including the White House.

As a disabled person myself, I can sympathize with your situation and I definitely understand your need for help.

I've done a bit of research and found these resources for you:

Family Directions of Iowa Stork & Family Nest
115 East Washington, Suite 5
Winterset, IA 50273
Phone: 515-462-5182
Kelley@familydirectionsiowa.org
www.familydirectionsiowa.org

http://www.madisoncountyhelp.org/funded_programs.asp

Others reading your story may be able to contribute more. In any case, please let us know if they've been helpful to you.

Thank you for sharing your story.

Sincerely,
Katina from Accessible.org

Good luck!

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