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Accessible.Org - The Home Of Accessible Web Site Design

Loving Wife Seeks Caregiver Help For Double Amputee Disabled Husband

by Linda M. Sizemore
(Woodbury, NJ, USA)

My husband is 50 and is a double amputee. I am his caregiver and things are getting difficult now that he doesn't have any legs.

Up until November of 2009 he had one leg, which made things a little easier helping him get from point A to point B.

Now he has no legs and it is very difficult for me to move him without help, which is not always available to me.

We live in an apartment that is not handicap accessible and we have steps both front and back. I purchased a ramp, which my son uses to get him in and out, but he is not always available to do this.

When I am home from work with him we can't even go out for a lunch because I can't get him out by myself.

Doctors' appointments a lot of the times are rescheduled because I can't get him out at that time.

It would be nice if I could get some type of lift to help me, or an agency that would pick him up and get him out for me.

I have tried all types of places and no one seems to want to help. Sometimes it would be nice just to take him outside for some fresh air but I can't do this on my own.

We also struggle at times financially. I work and he collects a Social Security check, but sometimes this is not enough and I have to let some bills go until the following month so I can get medications or pay for co-pays and the doctors.

He requires a lot of help and sometimes these things to help him are not covered under my insurance, so he does without.

My husband is a very good man. He has always worked to support us. Now he can't and watching me struggle breaks his heart.

I truly do not mind taking care of my husband. I love him and he is my world. My life has been put on hold until he can walk again.

I hate to see my boys putting their lives on hold to make sure things are easier for me. I appreciate everything they do for me and I would be lost without them, but they are young and deserve to live a little.

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Loving Wife Seeks Caregiver Help For Double Amputee Disabled Husband

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I know your struggle...
by: Rose Hilermann

Dear Caregiver,

I can say you are not alone in your struggle!

I have worked with many elderly and disabled people over the years and have been a caregiver since I was nine.

Where may I ask that you live as I have a few suggestions for you and I will have to look one up for you in order to connect you with people in your area.

Yours Truly,
Rose Hiltermann

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Information for you...
by: Anonymous

Has your husband applied for Social Security Disability? He would qualify given his condition. Once he received SSDI, then he would get Medicare and possibly Medicaid and qualify for home health care through the Senior Service Dept.

I hope this info helps you.
Good Luck to you and your family--I hope you find help soon.

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A tough road ahead...
by: Anonymous

Hi. I was running through the web trying to find support when I came across your letter. I am 26 years old and my mother just had her second leg removed today. Both are above the knee and due to Peripheral Artery Disease. I am trying to find some support here, in Louisiana, as well. I am a newlywed expecting our first child but I am taking my mother in when she comes home from the hospital. She has Medicaid, which I hope will help supply us with a home health nurse but I haven't spoken with a case manager yet. I am not sure how her mental health will be being that she just lost the first one in December so it is still a fairly new adjustment. As in your case, although losing the one was difficult, she could still get around. Thank you and I sympathize with your struggles.

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