Elijah With 1p36 Deletion Syndrome Seeks Vehicle Grant Money For Parents

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Elijah With 1p36 Deletion Syndrome Seeks Vehicle Grant Money For Parents

by Elijah Robinson
(San Antonio, Texas, USA)

Elijah

My name is Elijah Robinson and I was born with 1p36 Deletion Syndrome. This is a rare chromosome defect and I am suffering in many ways.

I have low muscle tone, daily seizures, and vision impairment. I cannot speak or walk, but I have an awesome wheelchair.

I have behavioral issues and autistic features. I have trouble swallowing and cannot eat by myself or dress myself.

Developmentally I am severely delayed. I have a VSD (ventricular septal defect) and I need to be supervised 24/7.

I was born with an omphalocele, which is a type of abdominal wall defect, as well as heart defect and I had surgery right after I was born.

I am receiving Occupational Therapy, Speech Therapy, Special Services from the hospital and Social Work and I have many doctor appointments to go to.

My mother says I am an Angel and true blessing. I love to laugh and sometimes it seems that I am talking to Angels.

I am writing you today because at the moment my family is having a hardship financially.

One of my two oldest brothers has Asperger Syndrome and also needs special attention throughout the day. He is also receiving Special services at school and has therapy during the week, to help his social behavior and development.

My mother stays at home to take care of us and make sure we are safe and satisfied. She also wants to make sure we become successful US Citizens. Her biggest dream is going back to school, to be able to work again and have a better income to also provide for the family. It has been her wish for quite some time now.

My father is a soldier serving the US Armed Forces and he loves his job as a medic. He is sacrificing a lot in order to provide for us. His income is low and he is working on getting promoted to become an E-4 soon. He works far away and we are living close to the BAMC in San Antonio so I can get to the hospital quick if I needed to.

We are in desperate need of a vehicle to get around, for my mom to accomplish all the medical appointments, and hopefully when I am able to go to school or daycare, for her to start school and get a better degree.

My parents have tried looking into financing a car, but my father’s credit requires for us to make a down payment and that is a lot of money for us to come up with.

My mom always says, "our kids are our future and all kids need a little help, a little hope and somebody who believes in them."

Thank you for taking your time reading this letter, any support and help is appreciated from Elijah and his family.

Do you have a dependable car you will sell, contact me. Would you be willing to finance, contact me. Any help will help us succeed.

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Elijah With 1p36 Deletion Syndrome Seeks Vehicle Grant Money For Parents

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Aug 12, 2010
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An Inspirational Story of Courage
by: Katina from Accessible.org

What a feat it is, to be so determined in the midst of adversity!

What you may want to consider doing right now is to share the story you posted here with automobile dealers in your area, especially the Toyota Company.

Create a video and share it on YouTube. You'd be surprised how many good-hearted people there truly are in our society.

Consider sending your letter to places like: the local news stations, newspaper, and talk shows. Another thing you can do is to write your government agency or even the President.

How to Write a Letter to the President

1. Visit the White House website at:
http://www.whitehouse.gov/contact

2. Draft a letter (in a Microsoft Word, or other writing program.

3. Ask someone to review the letter for grammatical, punctuation errors.

4. Edit the letter as advised.

5. Be honest, respectful in the letter.

6. Keep the content of the letter rated E for Everyone, in the event that your letter is chosen to be read by a member of congress.

7. Request confirmation that the President received the letter.

8. Thank him/her for their time in reading the letter.

9. List your contact information: email, telephone, full name, city/state you reside in.

10. Mail it! You could send the letter certified, needing a signature, to ensure it reached the desired destination.

11. Follow up by telephone, e-mail or post. It is extremely important to do only one follow-up so as not to appear inpatient or aggressive. A third party screens the letters to the president.

Sample Follow Up Letter/ Conversation
After writing to the President.

Hi, my name is (your name). I'm a resident of (city, state). I recently sent a letter to (President name) to share with him/her my story of being disabled and suffering with (type of illness/or issue).

I would like to request confirmation that the President has receive the letter.

Thank you so much for your time.

It's much appreciated.

Sincerely,
(your name).

Remember that members of congress and the President are an extremely busy people. They may have thousands of letters to read before getting to yours.

Good luck with your Endeavour.

Katina from Accessible.org
Creative Writer / Researcher

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Elijah With 1p36 Deletion Syndrome Seeks Vehicle Grant Money For Parents

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Elijah With 1p36 Deletion Syndrome Seeks Vehicle Grant Money For Parents